Bobby's WorldCitizens Holding Family Care Council of Florida from Tallahassee Area 2 AccountableContact UsAmazing AdvocatesDisclaimerInspirational SitesMeet The FamilyBobby's Favorite Stores/ResourcesDad's Note Book
A Note To State Agencies & Our Leaders about Problems ,Solutions, Ideas

Please veiw the note below for Ideas and solutions  for the Agencies

To All Our State Legislation Leaders:

I am Eldalee Cook .. a Mom with Disabilities.

I where many hats for my Family such as Cargiver, Support Coordinator, Activity Director, Transportation , Assistant to other Caregivers who are assigned to work with Bobby. I attened appointments . I am also an  a Translator for Bobby due to his disability ...etc. :

Here are some examples of my job...

  • Support Coordinate.
    • Occupational Therapies
    • Physical Therapies
    • Speech Therapies
    • Surgeries
    • Education Needs
    • Daily Activities
    • To Start Etc .*****************
  • Transport
    • Doctor Appointments
    • Surgeries
    • Therapies
    • Activities

Note my job is 24 hours 7 days a week.  Please keep in mind that our challage becomes even greater as our loved ones grow for those who are totally dependent ......               Please look at the catagory of Caregivers:

2 Parents:  In our case we have 2 Parents but only one can physically help with all Bobbys needs.

Bobby's Father can not lift Bobby's weight due to the four stents placed in his heart.

 I myself have adult ADHD and am also physically disabled but am doing all I can to help my Husband and my Son Bobby and also care for my Daughters.

That is our circumstances ::::***************************************************But Bobby's world represents even more Families in  different circumstances. Please Note Other Catagories:2 Parents , Single Parent, Grandparents, Siblings , Other Family Members and  Foster Parents.  To all leaders: Present surveys do not fairly represent all the divers groups od disabilities . The present surveys are Not Divers enough when questioning about disabilities...APD Surveys Does not cover all the diverse disabilities and actually cuts out some catagories :::This Must be reviewed.

How many are available to care for the loved one and are they physically capable of lifting and helping if it was required. If there is a mental challange do they know how to work with the challange and do they have Back ups.

If there is one Parent are all the tools in place  for that one parent to be involved to help care for the loved one...

Please do not expect that one  person  to be a Super Parent because Our Bodies are not invisable  . Place in all your services and policies an exemption or additional place of assistance for these catagories the parents of the caregivers situations.

*********************************************************************************************************** 

PLEASE.. remember the diverse challanges when a bill crosses your table. Because Everything You Do and Say Will  Directly Impacting Our Families Directly... I Know Personally Because Everytime You Made A Change In The Capitol We as a Family Faced A CHange . Some decisions blessed us while others truly disrupted our Family.

We Don't excpect you to be perfect . Just Balanced and Fair.

***********************************************************************************************************

A Quick Note:
 There has got to be a connection between Agencies. When Programs come about and the Agencies Consumer Services do not even understand another Agencies Programs and Policies  this lack of knowledge affects the consumer being served.
Can You Imaginge if the State Employees do not understand the Policies and Regulations of another Agency. How Do you think the Public being served Feels.
The Public is left out and is seriously placed in a bad situation and aggrivation will be the result.
Problem::
Because the consumer/ public is being serve make the web designs applicable to the consumer/Public.
I will be honost. for the highly inteligent person or a person who has alot of time the My Florida Website would be appropriate . But for some one who is in a hurry and does not have much time or has a disablity it would take a while to find  what you need. 
Presently when a consumer files for a service from the state . The agencies dont understand other agencies programs causing much disruption in the service . If one Agency has to go to many computer programs it will just frustatrate the state employee and when they get to us the consumer they will already have an attituted due to the computer and we will not be responded to with the right attitude.
If the consumer gets frustrated because they understand why the dont qualify in turn the state employee will be approached with the bad atitude that is not their fault..
Please Lets meet in the middle...
Idea/Solution
 Make a website that explains all Agencies functions  in detail; bringing all the information needed for not only the state employees but for the public into one page. All Program Names or pictures for those who have a hard time reading ..
This will bring both parties to the same site and will looking at the same page so if the consumer or  state employee is confused the can pin point where the problem is on the website..
If there is something the public is not suppose to have access to . Lock those pages....
But Stop all the different programs amongst the Agencies so they also dont have a difficult time understanding each other ....

Have An Awesome And Blessed Day
Eldalee Cook

Enter content here

Enter content here

Enter supporting content here